It’s that time of year again, Prom. We see the pictures of beautiful girls dressed up, escorted by their handsome dates. No doubt we also see the videos and pictures of beautiful girls asking a boy who has special needs to the prom. Posted on social media. We read the comments under the photos such as “So inspiring,” “In tears.” While I appreciate the thought and understand the motivation behind … [Read more...]
We Are Family
Every so often things on the home front would seem to fall apart a little. It got to a point that we could see a little pro-active check up might be needed from time to time. Living in a home where one person requires so much more time and attention than the others, it’s easy to neglect by default the very relationships you want to nourish! So, we found it wise to check up on those relationships … [Read more...]
No, He Won’t Get Better
Do you have those classic questions that people have been asking you over and over again since your unique parenting journey began? You know the ones I mean. That same thing or two you've heard people inquire year after year after year? I know that I have heard one relentless question since the day my son was first diagnosed with Hemophilia A - Severe 18 years ago — "Will he ever get … [Read more...]
How to Rise Above Disappointment
Give thanks to the Lord, for he is good; his love endures forever. (Psalm 118:1) These are the first words I read in my devotional book this morning as I sit on the beach, alone, disappointment hanging over me like a big, black cloud. I watch the waves ebb and flow, leaving rainbow-flecked foam in their wake. I want to give thanks to the Lord, but disappointment makes thanksgiving almost … [Read more...]
Sometimes, a Mom Needs to Be Mothered
"I've got a sinus infection," I texted the friend who was picking me up at an unfamiliar airport in an unfamiliar town. "Do you have any antibiotics?" "We've got your back," she replied. She wasn't kidding. When she delivered me to our destination, she and my other friends had arranged an array of medications on the bathroom counter—everything and more than I needed to beat the nasty bug … [Read more...]
When the World Stares at My Daughter
The little girl walking on the sidewalk ahead of us clutches her mother's hand, but continues to turn around and curiously survey my daughter as she sweeps her white cane back and forth with each step she takes. I smile at the little girl and continue the conversation I'm having with my daughter. It used to bother me when strangers would stare. My daughter was born with her eye condition, … [Read more...]