Every Tuesday night (except for when I have a good excuse not to) I drag myself over to the YMCA for cycle class. It's not an ideal time, but it's a rare hour after dinner, and after one kid is in bed, that I can squeeze in a workout thanks to my supportive husband. Not only is it not an ideal time, but I don't exactly love the instructor’s style. The music isn't that great and he yells a LOT … [Read more...]
A Path Chosen For Me
I tend to do a double take every time I see a stroller. There are lots of baby joggers that have similarities to medical strollers and wheelchairs. Medical equipment is looking a little less medical lately, at least to me. So when something catches my eye, I am hopeful there is another parent out there just like me. Often though, it's just a regular ol' stroller. We are in a transition phase … [Read more...]
The Health History Forms Get Me Every Time
My oldest son (neurotypical) had a dentist appointment. We arrived and I was asked to update his health history. Circle yes or no. Three long columns of health history were listed below: allergies, asthma, birth defects, cancer, cerebral palsy, cleft lip, diabetes, down syndrome, heart murmur, kidney disease, seizures, and on and on. You know the drill. It's routine, but for some reason that … [Read more...]
I Think He Will Walk
I think he will walk. Therapists, doctors, friends all repeatedly tell me this, "I think he's going to walk." And I agree. I think he will walk. It's very exciting, especially given his diagnosis at the outset. But I have to say as excited as I am about the fact that he'll likely be more mobile than we expected, it doesn't heal all the pain for me. It doesn't cure my son's genetic diagnosis. … [Read more...]