Special Needs Parenting

Finding Faith And Friendship On The Special Needs Journey

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No, He Won’t Get Better

June 13, 2018 by Barbara Dittrich

Do you have those classic questions that people have been asking you over and over again since your unique parenting journey began? You know the ones I mean. That same thing or two you've heard people inquire year after year after year? I know that I have heard one relentless question since the day my son was first diagnosed with Hemophilia A - Severe 18 years ago — "Will he ever get … [Read more...]

Filed Under: Barbara Dittrich, Living Life Daily, Medically Fragile Tagged With: Book of Job, cures, hope

Your Body, Not Your Fault

May 16, 2018 by Kathy McClelland

Every Tuesday night (except for when I have a good excuse not to) I drag myself over to the YMCA for cycle class. It's not an ideal time, but it's a rare hour after dinner, and after one kid is in bed, that I can squeeze in a workout thanks to my supportive husband. Not only is it not an ideal time, but I don't exactly love the instructor’s style. The music isn't that great and he yells a LOT … [Read more...]

Filed Under: Cerebral Palsy, Medically Fragile Tagged With: Encouragement, special needs

A Path Chosen For Me

February 23, 2018 by Kathy McClelland

I tend to do a double take every time I see a stroller. There are lots of baby joggers that have similarities to medical strollers and wheelchairs. Medical equipment is looking a little less medical lately, at least to me. So when something catches my eye, I am hopeful there is another parent out there just like me. Often though, it's just a regular ol' stroller. We are in a transition phase … [Read more...]

Filed Under: Living Life Daily, Medically Fragile

Please Excuse My Poor Church Attendance

January 29, 2018 by Evana

I grew up in a little church in a small town. It was one of those churches where everyone had “their” seat. If you were missing from church, there was a genuine concern, because you just didn’t skip church. Church attendance was highly valued during my childhood. My father had the opinion that if you were a member of a church, then you should support it with your presence. Attending church … [Read more...]

Filed Under: Medically Fragile Tagged With: christian parenting, church, Evana Sandusky, hospitals, illness

The Health History Forms Get Me Every Time

October 11, 2017 by Kathy McClelland

My oldest son (neurotypical) had a dentist appointment. We arrived and I was asked to update his health history. Circle yes or no. Three long columns of health history were listed below: allergies, asthma, birth defects, cancer, cerebral palsy, cleft lip, diabetes, down syndrome, heart murmur, kidney disease, seizures, and on and on. You know the drill. It's routine, but for some reason that … [Read more...]

Filed Under: Medically Fragile

Giving God Control Even in Special Needs

August 11, 2017 by Stephanie McKeever

It was never mine to begin with. This life I live was never all mine. I gave it to Christ a long time ago. I told him to use me, use my kids, my life, use whatever he needed. I've prayed prayers asking God to use me in bigger ways than inside the walls of my house. And, remember the song I sang asking for the Holy Spirit to lead me where my trust is without those same borders? Well, here I am. … [Read more...]

Filed Under: Grief, Medically Fragile, Stephanie Mckeever

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