Do you have those classic questions that people have been asking you over and over again since your unique parenting journey began? You know the ones I mean. That same thing or two you've heard people inquire year after year after year? I know that I have heard one relentless question since the day my son was first diagnosed with Hemophilia A - Severe 18 years ago — "Will he ever get … [Read more...]
Your Body, Not Your Fault
Every Tuesday night (except for when I have a good excuse not to) I drag myself over to the YMCA for cycle class. It's not an ideal time, but it's a rare hour after dinner, and after one kid is in bed, that I can squeeze in a workout thanks to my supportive husband. Not only is it not an ideal time, but I don't exactly love the instructor’s style. The music isn't that great and he yells a LOT … [Read more...]
A Path Chosen For Me
I tend to do a double take every time I see a stroller. There are lots of baby joggers that have similarities to medical strollers and wheelchairs. Medical equipment is looking a little less medical lately, at least to me. So when something catches my eye, I am hopeful there is another parent out there just like me. Often though, it's just a regular ol' stroller. We are in a transition phase … [Read more...]
Please Excuse My Poor Church Attendance
I grew up in a little church in a small town. It was one of those churches where everyone had “their” seat. If you were missing from church, there was a genuine concern, because you just didn’t skip church. Church attendance was highly valued during my childhood. My father had the opinion that if you were a member of a church, then you should support it with your presence. Attending church … [Read more...]
The Health History Forms Get Me Every Time
My oldest son (neurotypical) had a dentist appointment. We arrived and I was asked to update his health history. Circle yes or no. Three long columns of health history were listed below: allergies, asthma, birth defects, cancer, cerebral palsy, cleft lip, diabetes, down syndrome, heart murmur, kidney disease, seizures, and on and on. You know the drill. It's routine, but for some reason that … [Read more...]
Giving God Control Even in Special Needs
It was never mine to begin with. This life I live was never all mine. I gave it to Christ a long time ago. I told him to use me, use my kids, my life, use whatever he needed. I've prayed prayers asking God to use me in bigger ways than inside the walls of my house. And, remember the song I sang asking for the Holy Spirit to lead me where my trust is without those same borders? Well, here I am. … [Read more...]