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Questions for Jesus: Don’t You Care If We Drown

June 14, 2013 by notaloneparents

PennyAndAJAfter Penny was diagnosed with Down syndrome, there  were days when I felt as if I was drowning. I could almost feel my lungs  filling up with water. I could almost see my murky surroundings, the distorted objects and the light filtering through. I thought I would never  come to the surface.

Back then, my head was filled with questions and my  heart was filled with dread. I was scared of the life we would live as a  family. I was scared that Down syndrome would take our daughter away from  us. I was scared that I just wasn’t up to the task of having a child with  special needs.

In that time, I found great comfort in a passage from Mark 4. Here, Jesus and his disciples set out across a lake. Jesus falls asleep.  And then a storm comes up. It’s a tremendous storm, and the disciples  work furiously to keep the boat afloat. Finally, one of them shakes Jesus  awake and yells, “Teacher, don’t you care if we drown?”

I  love it. They are so scared, so exhausted, so certain that their situation is a  desperate one, that they cut right to what they are thinking. No false piety  here.

What’s  even better is Jesus’ response. Many years later, as I read this story that I  learned in Sunday School and saw in paintings and heard about in church, I  already know, and expect, what comes next. I expect Jesus to stand up and tell  the water and the wind to calm down. But the disciples didn’t know what was  coming. In fact, they are so frightened by Jesus’ response we can assume they  had no idea what was coming. I used to think they woke him up with the knowledge  that all he had to do was calm the storm. Now, I think they woke him up simply  because they wanted another set of hands to help bail out the boat.

They  wanted Jesus to pitch in, to do his part in solving the crisis. But Jesus had  other things in mind altogether. He doesn’t pick up a bucket or start sloshing  around in the nearly-swamped boat. Instead, he changes the landscape entirely:  “He got up, rebuked the wind and said to the waves, ‘Quiet! Be still!’ Then the  wind died down and it was completely calm.” A few lines later, we read that the  disciples “were terrified.”

Looking  back on those early days of Penny’s life, I can relate to the disciples. Like  them, I was in a storm, and I was desperate for help. Like them, when I couldn’t  stand bailing myself out anymore, I snapped at Jesus, “Don’t you care?” And he  responded to me, but not at all in the way I expected. He didn’t just step in  with a few pointers on how to keep my boat afloat. He changed the way I saw him  altogether. And he changed the way I see the world.

Now,  I look back on that storm with a bit of wonder. Yes, I had to endure the fear  and shame and guilt and sorrow. But I also had the privilege of watching God at  work, of seeing the wind and the waves dissipate. I had the chance, like the  disciples, to catch a glimpse of Jesus at work, not just helping me out, but  changing me so that I understand more of who he is and what he wants. The fear  that gripped my heart back then has turned to joy.

All  of us will endure storms in this life. And many of us will have the thought  toward God–”Don’t you care?”  This story reminds us that  God cares deeply, and that God responds to our cries for help. But he does so in  ways we can’t expect. And he does so in ways that can change us  forever.

—Amy Julia Becker

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Filed Under: Amy Julia Becker, Down Syndrome, Posts By Writers Tagged With: Amy Julia Becker, Down syndrome, not alone, parenting special needs, special needs, special needs parenting

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  1. Don’t You Care If We Drown? says:
    June 17, 2013 at 10:13 am

    […] his disciples wake him up when a storm comes. I wrote about it then, but it has been reposted on Not-Alone.org (a site I recommend for anyone who has children with special needs and would like some spiritual […]

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