Special Needs Parenting

Finding Faith And Friendship On The Special Needs Journey

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Questions for Jesus: Don’t You Care If We Drown

June 14, 2013 by notaloneparents 11 Comments

After Penny was diagnosed with Down syndrome, there  were days when I felt as if I was drowning. I could almost feel my lungs  filling up with water. I could almost see my murky surroundings, the distorted objects and the light filtering through. I thought I would never  come to the surface. Back then, my head was filled with questions and my  heart was filled with dread. I was scared of the life … [Read more...]

Filed Under: Amy Julia Becker, Down Syndrome, Posts By Writers Tagged With: Amy Julia Becker, Down syndrome, not alone, parenting special needs, special needs, special needs parenting

Building Bridges

May 10, 2013 by notaloneparents 4 Comments

I sometimes feel a strange sense of guilt, or at least dis-ease, about Penny. It's not what you might think. I'm about as comfortable as I can imagine being with a child who has Down syndrome, and I think my kids are too. (The other day, I was explaining that some athletes from the Special Olympics practice we were about to see might have Down syndrome. Penny did a fist pump in the air and … [Read more...]

Filed Under: Amy Julia Becker, Down Syndrome Tagged With: Amy Julia Becker, not alone, special needs, special needs parenting

Full or Functional

April 12, 2013 by notaloneparents 3 Comments

She meant well when she asked. “How high-functioning is your daughter?” I didn’t think much of it as I replied, “Oh, she’s very high-functioning. Her intelligence is at an age-appropriate level. The developmental delays she experiences are related to motor skills. She can’t jump or run very well. She can’t whistle. That kind of thing.” “That’s great,” she said. And then the conversation moved … [Read more...]

Filed Under: Amy Julia Becker, Down Syndrome, Living Life Daily, Posts By Writers Tagged With: Amy Julia Becker, Down syndrome, faith, not alone, special needs, thin places

Mothers Share Truths Learned Because of Down Syndrome

March 20, 2013 by Ellen Stumbo 33 Comments

Today is World Down Syndrome Day! March 21, because people with Down syndrome have 3 copies of the 21st chromosome.  Many use this day as an opportunity to educate, or spread awareness of the different challenges that these individuals face. It is a day set apart to celebrate our kids, siblings, cousins, friends, and neighbors with Down syndrome. Celebrate Down syndrome? Yes, I know, it might … [Read more...]

Filed Under: Down Syndrome, Ellen Stumbo, Love Tagged With: Amy Julia Becker, Down syndrome, Ellen Stumbo, Gillian Marchenko, Stephanie Huback, truths

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