I don’t know about you, but sometimes I get so focused on dealing with all the current crises in our family life that I don’t spend enough time reflecting on our blessings. Most notably, in our fight for progress with our children’s care now, we forget how fortunate we are to live at such a time as this. Not only are treatment breakthroughs of every kind occurring more rapidly, but the flow of … [Read more...]
A RARE Kind of Love
There are so many things that caught me by surprise when I became a mother. I always knew I wanted to have children, but I was never really in touch with my expectations beyond that. I certainly never anticipated that I would become the mother of children with special needs. When our son burst joyfully into the world over 13 years ago, he instantly placed us in that role with the mere testing of … [Read more...]
The Dirty Job of Special Needs Parenting
“Now that I, your Lord and Teacher, have washed your feet, you also should wash one another’s feet.” (John 13:14, NIV) “Bloody noses are just a nuisance,” the hematologist proclaimed. I melted into tears and frustrated anger as we stood there in the exam room, sleep deprived and disheveled, lacking a desperately needed shower. “YOU live with this and see how much of a nuisance this is!” I cried … [Read more...]