Special Needs Parenting

Finding Faith And Friendship On The Special Needs Journey

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When Chronic Pain Makes Us Doubt God’s Promises

August 29, 2016 by Jolene Philo Leave a Comment

Chronic pain. Parents of kids with special needs deal with it every single day. Not only our children's pain, which is what springs to mind for most moms and dads when the topic arises. But also our own chronic pain. We all experience it. Our pain can be caused by the physical demands of caregiving. It can be mental and emotional pain exacted by sleep deprivation, the trauma of seeing our … [Read more...]

Filed Under: Grief, Jolene Philo, Living Life Daily Tagged With: chronic pain, Jolene Philo, pain

A Special Needs Thanksgiving Prayer

November 28, 2013 by Jolene Philo 1 Comment

Blessed Thanksgiving from Not Alone's special needs bloggers. We are so thankful for you and your dedicated care of children with special needs! ~ Jolene Philo … [Read more...]

Filed Under: Jolene Philo, Pin It, Thanksgiving Tagged With: Jolene Philo, prayer, thanksgiving

Modifying the World to Welcome Children with Special Needs

July 25, 2013 by Jolene Philo 18 Comments

Modifications. They are a necessary and natural part of life for families who want their loved ones with special needs to have access to the world. One of my earliest memories is watching carpenters build a ramp so Dad could wheel in and out of our house. Mom modified an old leather toiletry bag to carry Dad's urinal when we were out and about since few bathrooms were wheelchair accessible in the … [Read more...]

Filed Under: Jolene Philo, Living Life Daily, Scripture Tagged With: American with Disabilities Act, Different Dream Parenting, Holy Spirit, Jolene Philo, modifications, parenting special needs, prayer, Public Law 94-142, special needs, special needs ministry, special needs parenting, US Education Department Office for Civil Rights

He Won’t Remember: Children & PTSD

June 27, 2013 by Jolene Philo 13 Comments

Some things parents never forget. Like the first time a mother holds her newborn child. Or the first time a baby belly laughs at a father's antics. But when I think of our son's early days, one unpleasant memory comes to mind. Our baby's wince of pain when the nurse took him–bristling with drainage tubes, feeding tubes, IVs, and monitor wires–and placed him in his daddy's arms. Newborns Don't … [Read more...]

Filed Under: Jolene Philo, Mental Illness Tagged With: Different Dream Parenting, infant memory, Jolene Philo, parentng special needs, Post Traumatic Stress Awareness Month, PTSD, PTSD treatment, special needs, special needs parenting

Alphabet Soup Is Hard to Swallow

January 24, 2013 by Jolene Philo 6 Comments

Alphabet soup isn't hard to swallow. Not for most people anyway. But when a pediatrician says your newborn baby has esophageal atresia and tracheoesophageal fistula (EA/TEF), the diagnosis is a hard one for parents to digest. And for the baby with this condition, soup–or any kind of food–can be deadly. Alphabet Soup: EA/TEF Style My husband and I learned of our son's diagnosis about seven hours … [Read more...]

Filed Under: Jolene Philo, Living Life Daily, Posts By Writers Tagged With: alphabet soup, EA/TEF, isolation, Jolene Philo

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