It seems a strange thing to be grateful for, but I’m thankful both boys are on the spectrum. Not every day. But most days. Weird, right? But I get good things in twos: Both boys love to slam each other on the ground, on each other, on the bed. They love the pressure of their daily matches, and neither one complains that the other is being too rough. That’s because short of a puncture wound, … [Read more...]
Siblings: So Full of Love
“Mom, sometimes, when I look at Nichole she is so cute that I feel like crying because my heart is so full of love.” There are times I look at my children and I feel like crying because of the intense love I feel for them. It is a love so hard to contain that it spills out in tears. I get this feeling, I am a mom. However, coming out of the mouth of Ellie, my 6-year-old daughter, it surprised … [Read more...]
The Summer “Gentling:” Or, How Disability Will Jack Up Your Original Blog Title If You Wait Long Enough.
I came up with the title, “The Summer Gentling” on one of summer’s earliest days. I came up with it because for one blazing second I thought that things would be quieter or easier when my children weren’t bound into a schedule of academics and activities. I thought that waking late and laying around and playing in the pool were the panacea to stress, and my complaining, holler-y kids would become … [Read more...]
When the Disability’s Not So “Bad”
I feel guilty about a very strange thing. Not about something I’ve done, but about something I was given. Today, I want to hold my hand up and shield people from paying attention to this part of my life; here, in this particular community of parents who struggle daily with special needs, and never-ending vigilance. A few codes in our neurologist’s office indicate I’ve every right to be among you … [Read more...]
The Googolplex of Disability, or, How Many Times I Have to Repeat Myself
I’m going to be honest. I took high school calculus because my best friend was taking it, and I needed to prove I was as smart as she was. I was very insecure, and what’s worse, I hated math. But I did get something good from all those numbers: a B- and a neat little tidbit: A “googol” is 10 to the power of 100. The “googolplex” is significantly larger: 10 to the power of a googol - 10googol, or … [Read more...]
When Our Children with Disabilities Rise to the Occasion
(For Dana) T.S. Eliot wrote that April is the “cruellest month.” Not for me. I find it’s barren February, with its unkind cold, and in which month I have known too many men of character who have died recently, and long past. At 6’7” with a perpetual mustache, bright blue eyes, and a voice like a thunderclap, Boyd Salsbury cut an imposing profile. His demeanor was gruff, his words carefully … [Read more...]