"I was already on a spiritual journey, but engaging this process with my son and ASD has me on another level!" - Monica, mom of an 8 year old boy diagnosed with autism. The Blissfulness of Same Autism means dealing with lots of the same thing, over and over, and over again, often mixed with compulsion and vigor. My son's high need for control triggers my own and we both study to create as much … [Read more...]
Double the Fun
It seems a strange thing to be grateful for, but I’m thankful both boys are on the spectrum. Not every day. But most days. Weird, right? But I get good things in twos: Both boys love to slam each other on the ground, on each other, on the bed. They love the pressure of their daily matches, and neither one complains that the other is being too rough. That’s because short of a puncture wound, … [Read more...]
Different Just Like Me
It was a Thursday night, and I was sitting on the couch after dinner, watching the news. Noah slipped in from the kitchen and sat down next to me. A few times daily, Noah sidles in to check on me. While his ninja-level lurking usually scares me out of my skin (because, as he says, “Screaming makes my brain all fluttery”), Noah likes to periodically sense my mood and see what I’m doing. Noah … [Read more...]
The Summer “Gentling:” Or, How Disability Will Jack Up Your Original Blog Title If You Wait Long Enough.
I came up with the title, “The Summer Gentling” on one of summer’s earliest days. I came up with it because for one blazing second I thought that things would be quieter or easier when my children weren’t bound into a schedule of academics and activities. I thought that waking late and laying around and playing in the pool were the panacea to stress, and my complaining, holler-y kids would become … [Read more...]
The Goodbye Salute: Noah Transitions to Middle School
In the gymnasium at North Bend Elementary, a smallish school in a mostly agrarian county in northeast Maryland, we parents sat packed together in tight rows. We were prepping for a transition. In the front of the gym, on the floor, were rows of children from kindergarten through fourth grade. They were present as witnesses to this celebration of the fifth graders. Today, the school would laud … [Read more...]
When the Disability’s Not So “Bad”
I feel guilty about a very strange thing. Not about something I’ve done, but about something I was given. Today, I want to hold my hand up and shield people from paying attention to this part of my life; here, in this particular community of parents who struggle daily with special needs, and never-ending vigilance. A few codes in our neurologist’s office indicate I’ve every right to be among you … [Read more...]