A friend asked me how my family was doing. I said all was status quo, nothing exciting, no ups, no downs. We haven't had any bad days or really exciting things to report. Today was just ... today. Sounds kind of boring to the outsider. But actually, we have so much joy in the mundane. There was a time you would find us at the soccer fields with one of our boys. Occasionally, it could feel like … [Read more...]
When Our Children with Disabilities Rise to the Occasion
(For Dana) T.S. Eliot wrote that April is the “cruellest month.” Not for me. I find it’s barren February, with its unkind cold, and in which month I have known too many men of character who have died recently, and long past. At 6’7” with a perpetual mustache, bright blue eyes, and a voice like a thunderclap, Boyd Salsbury cut an imposing profile. His demeanor was gruff, his words carefully … [Read more...]
Saving Up the Hard Stuff
“So much will change,” they say, pointing to your swollen belly, nearly giddy with the kind of knowledge that only experience supplies. “Your life will never be the same!” I know, you think smugly. I’ve heard it, I’ve read it, it’s the mantra you mothers all repeat. But they’re right, of course. While things will change, many of those changes are expected: those that arise from the training of … [Read more...]
An Open Letter to the Yoplait Company
An Open Letter to the Yoplait Company To Whom it May Concern: I write to you concerning your product offering known as “Go-Gurt.” I’m not even sure I’m hyphenating or capitalizing this word correctly. Your website isn’t exactly clear. I think it’s actually “Go⇒Gurt” but just typing that took clip art and 10 minutes of my time. Nevertheless, I need to explain what may have been a radical … [Read more...]
Anxious Minds
“I have a theory about Caillou,” Noah says. I have been bent over, picking things up in the front hallway. My three have been away from me, testing the patience of my parents for two weeks while I've finished my next book. So this mess, today? I’m okay with it. It’s proves they’re here. And I’ve missed them fiercely. “Dying, huh? Well, this should be interesting.” I stand up and face him. I … [Read more...]
Running on EMPTY
Seeing the red light blinking that I’m almost out of gas and having a mini panic attack knowing how much farther I need to drive is how I feel when I’m depleted emotionally and physically in my care-giving responsibilities. Even an avid, well seasoned, and trained runner might say some of the same things we do, when we realize we’re running on empty: “I’m SO tired!” “I can’t do this … [Read more...]