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tripping over the “I don’t know”s in special needs parenting

June 2, 2014 by Shannon Dingle

Lately I’ve been peppered with questions I can’t answer.

From a friend:  “Will she walk on her own?”

From a fellow parent at our school:   “Will she be able to come here too?”

From a leader at our church:   “How will this next therapy or surgery help?”

From myself:   “Will we be able to afford everything she needs?”

From our babysitter:   “Will she be able to talk more soon?”

I hate the answer to them all.

I. don’t. know.

I rarely lack for words, but my childhood stutter returns at questions like the ones above. As a pleaser, I want to be able to give the response they want to hear. As a mother, I want to know what the long-term will be. As an advocate for her, I would feel more confident armed with answers.

I’ve never liked “I don’t know.”

But the longer I walk this road as a special needs parent, the more I realize that this is a life lived in uncertainty. I don’t know the answers to any of the questions above about my daughter with cerebral palsy, nor do I know when the next seizure will come for my son with epilepsy, what medical advances will be made by the time my child with HIV is an adult, or where our children’s trauma from the past will trickle out (or explode forth) in the future.

I'm thankful to be able to trust the One who does hold the future - my future and her future and their future - in complete control, but? I still trip on this walk of uncertainty some days.

I’m thankful to be able to trust the One who does hold the future – my future and her future and their future – in complete control, but? I still trip on this walk of uncertainty some days.

Okay, most days.

I’m not ashamed of my skinned knees and stubbed toes because every time I trip, He is faithful.

He drew me up from the pit of destruction, out of the miry bog, and set my feet upon a rock, making my steps secure. {Psalm 40:2, ESV}

So walk on, my friend. Trip along the way like me, if you must. Together, we can trust a God who is more than able to draw us up and make our steps secure once more.

Even in the midst of our “I don’t know”s.

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Shannon Dingle

A recovering perfectionist, Shannon Dingle now delights in the chaos of parenting six small children. She also leads Access Ministry at Providence Baptist Church in Raleigh with her husband Lee, a role which began when special needs were something that happened in other families but not theirs (yet). You can find more of her writing about their family and ministry at Dinglefest and The Works of God Displayed. Most days are less about writing, though, and more about diapers, carpool, and meal prep, amid the logistics that come along with diagnoses of cerebral palsy, HIV, epilepsy, childhood trauma, and FASD. Her parenting journey is nothing like what she thought it would be, but she's thankful God discarded her childhood dreams and blessed her with this perfectly imperfect life instead.
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Latest posts by Shannon Dingle (see all)

  • self care isn’t selfish - January 4, 2016
  • our child is struggling with church - November 2, 2015
  • lessons learned post-surgery - October 5, 2015

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Filed Under: Adoption, Cerebral Palsy, Grief, Peace

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