“I feel like such a failure, I mean, I’m trying to do everything I can to get services for my son but I’m not getting anywhere. His behaviors are getting so challenging. It’s just been….hard. My house is a mess, I forgot to pay for a school field trip, we ran out of clean underwear and my husband and I are fighting all the time.” She sits across from me at Panera with a bread bowl, she stirs the hot chili absentmindedly and a tear falls in her soup.
“You’re not a failure.”
“I sure feel like one,” she says.
“But you’re not.”
“My son seems so far behind even compared to other kids with the same diagnosis, what am I not doing right?”
I hear the agony in her voice.
“Who is calling insurance trying to get therapy approved?”
“Well of course I am, I’ve been calling them everyday for three days.”
“See, you’re not a failure.”
She shakes her head.
“Who sits with him at night when he cannot sleep?”
“I do,” she says.
“You’re not a failure. Who spent two weeks at the hospital with him because of surgery and actually had to help doctors understand his medical condition?”
“Not a failure. Who is going into the schools to make sure that his IEP meeting is followed and that he has the right supports in the classroom?”
“You’re not a failure. Who knows the best way to get him settled down when he has a sensory overload?”
“You’re not a failure. Who spent three years raising money for a car ramp?”
“You’re not a failure. Who is your child’s most fierce and devoted advocate?”
“That does not sound like a failure to me. Who knows him better than anyone else? Who understand his needs even with limited communication? Who cheers him on and celebrates his accomplishments no matter how small? Who witnesses the beauty of his life? Who is always present, ever loving, and willing to do whatever it takes to help him?”
She grabs for a napkin and wipes her eyes.
“Just sometimes it’s so easy to focus on the fact that he seems so far behind.” She says.
“But that is not a reflection of you as his parent, that’s just where he is at right now.”
“I think sometimes that is the hard part, because I wish life was easier for him, I wish I could fix everything for him.”
“You care so much because you love him, and there is nothing you wouldn’t do for your son.”
“No, I would move mountains for him if I had to, or at least I would try.”
“And you already are. You’re not a failure.”
“I love him, just the way he is,” she says.
“I know you do.”
“He’s my life.”
“I know he is.”
“I just need…”
“A date night.”
“Yes! A date night, oh that would be nice!”
“Okay, so let’s talk about respite.”
“Yes, let’s talk.”
“But hey, remember, you’re not a failure.”
Friend, if you parent kids with disabilities, it is possible that at times you struggle with similar feelings and you feel like a failure.
Today, I want you to know that you’re not a failure, you give so much for your child, you love runs deep and wide and pushes you to move mountains. Your child’s development is not a result of your parenting. You are enough. You’re not a failure.
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