Special Needs Parenting

Finding Faith And Friendship On The Special Needs Journey

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When You Know Too Much

September 26, 2016 by Jolene Philo Leave a Comment

This summer our family embarked upon the grand adventure of multi-generational living. It began in May when our daughter, her husband, and their then 13-month-old son moved into our upstairs as they transition from starving graduate student status to starving artists status. The adventure is going well, everyone is adjusting, and my husband and I love sharing every day life with our … [Read more...]

Filed Under: Jolene Philo, Joy, Living In The Moment

When Chronic Pain Makes Us Doubt God’s Promises

August 29, 2016 by Jolene Philo Leave a Comment

Chronic pain. Parents of kids with special needs deal with it every single day. Not only our children's pain, which is what springs to mind for most moms and dads when the topic arises. But also our own chronic pain. We all experience it. Our pain can be caused by the physical demands of caregiving. It can be mental and emotional pain exacted by sleep deprivation, the trauma of seeing our … [Read more...]

Filed Under: Grief, Jolene Philo, Living Life Daily Tagged With: chronic pain, Jolene Philo, pain

Lost in Translation

July 25, 2016 by Jolene Philo 4 Comments

A little more than a year ago, a friend took a few of my books to a special-needs family camp in Pelchi, Latvia. Partway through the week, she sent a text. "They love what you write about. Can you come next year to work with the moms?" "YES!" I immediately texted back. "Count me in." From that moment on, my resolve to attend remained firm. It was bolstered when the fundraiser organized by dear … [Read more...]

Filed Under: Jolene Philo, Joy Tagged With: language barriers, Latvia, special needs camp

The Sad Truth about PTSD in Children

June 27, 2016 by Jolene Philo Leave a Comment

For the first 52 years of my life, I had no idea children could struggle with post-traumatic stress disorder (PTSD). But in 2008 when my son, age 26, was diagnosed with this mental illness, I learned the truth. PTSD in children is real, and my son had been living with it for 26 years. His PTSD began when he had surgery less than a day after he was born. "He won't remember," the doctors told … [Read more...]

Filed Under: Jolene Philo Tagged With: post-traumatic stress disorder, PTSD Awareness, PTSD treatment Month

Will We Cling to God?

May 23, 2016 by Jolene Philo 9 Comments

It's here again. The anniversary of the day my world turned upside down. The birthday of our firstborn. The day my heart swelled with a fierce, intense, permanent love. The day my heart broke. The day the doctor said, "There's something wrong with your baby." That day is here again. The anniversary of the decision my husband and I made 34 years ago. Would we cling to God when our newborn … [Read more...]

Filed Under: Grief, Jolene Philo, Living Life Daily Tagged With: choice, despair, Romans 8:32

God Has a Reason for this New Life

April 25, 2016 by Jolene Philo 3 Comments

My baby brother turns 57 today. He is my parents' third child. Mom was shocked, rather than thrilled, to hear she was pregnant in the fall of 1958. And for several good reasons. Her husband had been diagnosed with multiple sclerosis only a few months earlier. The progress of the disease meant he would soon give up his job. She had just signed a teaching contract to support her family. Then … [Read more...]

Filed Under: Guest Posts, Jolene Philo, Joy Tagged With: multiple sclerosis, new life, unborn child

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