Special Needs Parenting

Finding Faith And Friendship On The Special Needs Journey

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Lost in Translation

July 25, 2016 by Jolene Philo

A little more than a year ago, a friend took a few of my books to a special-needs family camp in Pelchi, Latvia. Partway through the week, she sent a text. "They love what you write about. Can you come next year to work with the moms?" "YES!" I immediately texted back. "Count me in." From that moment on, my resolve to attend remained firm. It was bolstered when the fundraiser organized by dear … [Read more...]

Filed Under: Jolene Philo, Joy Tagged With: language barriers, Latvia, special needs camp

The Sad Truth about PTSD in Children

June 27, 2016 by Jolene Philo

For the first 52 years of my life, I had no idea children could struggle with post-traumatic stress disorder (PTSD). But in 2008 when my son, age 26, was diagnosed with this mental illness, I learned the truth. PTSD in children is real, and my son had been living with it for 26 years. His PTSD began when he had surgery less than a day after he was born. "He won't remember," the doctors told … [Read more...]

Filed Under: Jolene Philo Tagged With: post-traumatic stress disorder, PTSD Awareness, PTSD treatment Month

Will We Cling to God?

May 23, 2016 by Jolene Philo

It's here again. The anniversary of the day my world turned upside down. The birthday of our firstborn. The day my heart swelled with a fierce, intense, permanent love. The day my heart broke. The day the doctor said, "There's something wrong with your baby." That day is here again. The anniversary of the decision my husband and I made 34 years ago. Would we cling to God when our newborn … [Read more...]

Filed Under: Grief, Jolene Philo, Living Life Daily Tagged With: choice, despair, Romans 8:32

God Has a Reason for this New Life

April 25, 2016 by Jolene Philo

My baby brother turns 57 today. He is my parents' third child. Mom was shocked, rather than thrilled, to hear she was pregnant in the fall of 1958. And for several good reasons. Her husband had been diagnosed with multiple sclerosis only a few months earlier. The progress of the disease meant he would soon give up his job. She had just signed a teaching contract to support her family. Then … [Read more...]

Filed Under: Guest Posts, Jolene Philo, Joy Tagged With: multiple sclerosis, new life, unborn child

When All I Want Is to Be Done with Special Needs

March 28, 2016 by Jolene Philo

One of the first words out of our oldest grandchild's mouth was, "DONE!" He used it emphatically at the end of meals... DONE! When having his face washed or his nose wiped... DONE! Or my personal favorite...approximately two seconds after his parents put him in his crib for a nap and then carefully and oh-so-quietly shut the door to his bedroom... DONE! Lately, I've found myself silently … [Read more...]

Filed Under: Jolene Philo, Living In The Moment, Living Life Daily Tagged With: endurance, patience, perseverance

Eight Ways to Make Therapy Fun

February 22, 2016 by Jolene Philo

For two and half months last fall, I felt like a prisoner wearing a ball and chain. Not on my foot, but on my left hand. Not a ball made of iron, but of therapy appointments two or three times a week as well as hand and thumb exercises every two hours. Day after day. Week after week. Month after month. Lugging around the ball and chain designed to restore the function of a severed thumb tendon, … [Read more...]

Filed Under: Jolene Philo

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