Special Needs Parenting

Finding Faith And Friendship On The Special Needs Journey

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Eight Ways to Make Therapy Fun

February 22, 2016 by Jolene Philo

For two and half months last fall, I felt like a prisoner wearing a ball and chain. Not on my foot, but on my left hand. Not a ball made of iron, but of therapy appointments two or three times a week as well as hand and thumb exercises every two hours. Day after day. Week after week. Month after month. Lugging around the ball and chain designed to restore the function of a severed thumb tendon, … [Read more...]

Filed Under: Jolene Philo

Address Your Stress

January 22, 2016 by Jolene Philo

I was twenty-five years old when I became a mom, and my world changed forever. Like all new parents, I suddenly realized the needs of our small bundle of sweetness would rule my heart and my days for years to come. Unlike most new parents, my husband and I soon had to surrender our son to the cadre of surgeons, doctors, and nurses in a distant city who could save his life. Before we could kiss him … [Read more...]

Filed Under: Jolene Philo, Mental Illness Tagged With: mental illness, stress, trauma

Unto Us a Child Is Born

December 24, 2015 by Jolene Philo

For the first time in many years, my husband and I are greeting the coming of the Christ Child in the presence of a baby. Our sweet grandson is almost 10 months old, and we are oohing and aahing over every new task he masters. Hand-clapping. Feeding himself and making a mess. Drinking from a sippy cup. Creeping and crawling across the carpet for the first time. The wonder of Christmas … [Read more...]

Filed Under: Grief, Jolene Philo, Joy, Love Tagged With: Christmas, grief, joy, Trinity

6 Disability Lessons Learned from a Kitchen Knife

November 18, 2015 by Jolene Philo

About six weeks ago, the knife I was using to remove the label from a container slipped and severed the tendon in my left thumb. After waking up from repair surgery to a left hand swathed and immobile in a ginormous splint, the surgeon outlined a list of restrictions. No lifting with the left hand. No driving. No getting the splint wet. Those three restrictions plunged me into the world of … [Read more...]

Filed Under: Jolene Philo, Living Life Daily Tagged With: dependence, disability

10 Positive Ways to Advocate at School

October 21, 2015 by Jolene Philo

Advocacy at school. For many in the special needs community, that phrase conjures images of parents breathing fire while toting armloads of files and folders into an IEP meeting or annual review. Not a pretty picture. And, if the truth be told from my vantage point as a former teacher, it's not the most effective way to advocate at school either. During my 25 years in public education, the … [Read more...]

Filed Under: Jolene Philo Tagged With: advocacy, education, school

Mid-September Is a Good Time to Pray

September 16, 2015 by Jolene Philo

  Mid-September. The time of the year when the bloom is off the new school year rose. Lovely summer tans begin to fade. New shoes get scuffed. Spiffy school clothes lose their sizing in the wash. Haircuts go scruffy. The first wave of viruses rips through the classroom. Kids, who have been on their best behavior for days and weeks, begin to crack under the strain, and their true personalities … [Read more...]

Filed Under: Jolene Philo Tagged With: education, prayer, school

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