Special Needs Parenting

Finding Faith And Friendship On The Special Needs Journey

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The Special Needs Grandparenting Tug of War

July 23, 2015 by Jolene Philo

I will never forget the day my mother and mother-in-law played their first round of grandma tug-of-war. With our two-week-old son as the rope. The competition was held at my parents' home. We stayed there for a few weeks after our baby was dismissed from NICU before taking him to the remote corner of South Dakota where we lived 90 miles from the nearest hospital. My husband's mother, who lived … [Read more...]

Filed Under: Jolene Philo, Medically Fragile Tagged With: bonding, love, special needs grandparenting

Shouting PTSD Awareness from the Mountaintop

June 25, 2015 by Jolene Philo

In the small midwestern town where I grew up during the 1960s, the words cancer, pregnant, divorce, sex, and mental illness were always spoken in whispers, accompanied by dark looks,  furtive glances, and the covering of children's ears. Yes, I am that old. So much has changed since those days–some for the good and some for the bad. But this post isn't about what has changed. It's about what … [Read more...]

Filed Under: Uncategorized Tagged With: childhood developmental trauma, mental illness, PTSD, PTSD Awareness Month

May Again: Memories of the Good, the Bad, and the Lovely

May 28, 2015 by Jolene Philo

It’s May again, my favorite month. Filled with birthdays, spring flowers blooming, cornfields awash in new life, turning the countryside in our state a most delicious green. May is also my least favorite month. Filled with wrenching separations, fading lilac blossoms and tulip petals blowing in the wind, not to be seen for 12 more long months. May, for me, is a tangled mess of … [Read more...]

Filed Under: Grief, Jolene Philo, Peace Tagged With: birthdays, grief, mutliple sclerosis, new life, restoration

Every Child Welcome: Cooking Up Special Needs Inclusion

April 30, 2015 by Jolene Philo

Katie Wetherbee and I first met at a special needs ministry conference around 2010. She made a beeline to my book table and introduced herself. I attended Katie’s workshop and loved what she had to say. Before the end of the conference, we exchanged email addresses. We quickly became good friends. Maybe because we had a lot in common. We were both the parents of kids with special needs. We … [Read more...]

Filed Under: Book Reviews, Jolene Philo Tagged With: inclusion, Katie Wetherbee, special needs ministry

Every Life Matters When God Writes the Story

March 26, 2015 by Jolene Philo

When I was a little girl, going shopping with my parents was a little scary. Because of Leon. Leon sat in his rusty wheelchair, clothed in rags, his body hunched and dirty, his smile toothless, holding a cup full of pencils for sale in his twisted hand. Most people walked right by, as if he wasn't there, though a few slipped a nickel in the cup and took a pencil. Leon scared me. But he didn't … [Read more...]

Filed Under: Cerebral Palsy, Jolene Philo Tagged With: cerebral palsy, homelessness, sanctity of life

5 Ways to Recover from Caregiver Chaos

February 26, 2015 by Jolene Philo

Two days before Thanksgiving of 2014, my life descended into caregiver chaos. Not because of a kid with special needs. But because of an aging parent with special needs. My mom, to be specific. Who came to stay with us until the end of the year to give her primary caregivers, my brother and his wife, a much needed break. That break nearly broke me because in quick succession... Mom had what we … [Read more...]

Filed Under: Jolene Philo, Transitions Tagged With: organization, scheduling, time management

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