Let’s face it. If you’re raising a child with a disability, then your life is anything but typical. More like fragile, complex, overwhelming, exhausting. After battling the everyday challenges that never seem to leave you alone, there is not much left in the tank. You may also be in the situation where caring for your child for the rest of your lives is becoming more and more real. The older you … [Read more...]
One Thing I’ve Learned from Special Needs … Pray
If there's one thing I've learned from special needs ... pray. Pray. Before everything else. Pray. When I'm overwhelmed and in the midst of the chaos. Pray. When there's nothing else. Pray. With my eldest I can remember two distinct times of prayer when he was a baby. Two times. Two times I cried out to God in need in those early years. I'm sure I prayed, but life was just easier with a … [Read more...]
5 Things I Learned from Our Pilgrimage to the Holy Door
Holy Doors are massive bronze works of art located in selected cathedrals and basilicas around the world. They are only opened during Jubilee Years which typically occur once every 25 years. Not surprisingly, the traditional Holy Door is in St. Peter’s Basilica in Rome, but on December 8, 2015, Pope Francis announced the Jubilee Year of Mercy and designated 8 Holy Doors around the world. The only … [Read more...]
Helping our kids with disabilities find and establish friendships
Friends are an integral part of a happy and fulfilled life. We laugh with them, we cry with them, we play with them, we pray with them. As Charles Swindoll says, "I cannot even imagine where I would be today were it not for that handful of friends who have given me a heart full of joy. Let's face it, friends make life a lot more fun." Helping our kids with disabilities find and establish … [Read more...]
Somebody’s Always Watching
We all know disability draws the attention of others. I get it. I look, too. We often feel like everybody is Evan's friend. (Mostly pretty girls. Evan has moves like Jagger. Be jealous.) People we don't recognize will stop to talk to Evan because they know him from somewhere. Occasionally, they will tell us how they are acquainted with him. But usually, we go without ever discovering how our … [Read more...]
Lost in Translation
A little more than a year ago, a friend took a few of my books to a special-needs family camp in Pelchi, Latvia. Partway through the week, she sent a text. "They love what you write about. Can you come next year to work with the moms?" "YES!" I immediately texted back. "Count me in." From that moment on, my resolve to attend remained firm. It was bolstered when the fundraiser organized by dear … [Read more...]