You followed all of the advice. With tenderness and care, you purchased all of the tagless clothes and made the sensory-friendly accommodations. You examined all of the lists for the best Christmas toys for children with special needs. And you made dietary choices that would best suit your child's restrictions. STILL your holidays aren't as you expected. Relatives Anyone who has taken even a … [Read more...]
Evolution and Hard Decisions
Parenting is synonymous with change. Our children grow and learn; they achieve and alter. And when they are special needs children, their bodies and abilities are in constant evolution. Change is rarely comfortable. Jesse’s original diagnoses include PDD-NOS, ODD, OCD, and ADHD. Some of those acronyms will change as he grows. Some – if God sees fit – might disappear. New ones could be added. … [Read more...]
When You Really Don’t Want to Fight the Good Fight
Over the summer, we were hit with a triple whammy. Over the course of just a couple of days, we got three letters, one after another. Each one was a punch in the gut, increasing in intensity each time. First, the SSI benefit Sam had been receiving that was our only available option to pay for therapy was being taken away effective the following month. This, just after receiving a letter a couple … [Read more...]
God Has Not Wired Us To Quit
It was quiet. Finally. I had no reason to trust that it would last. Max was in his bed, sleeping perhaps, sweat still on his brow. I was sure the house was moving, or maybe I just couldn’t get my sea legs. There is a part of me that goes numb on nights like this, weeks like this one. My tired brain just can’t yawn open wide enough to let it all in. My precious son; he is gentle of … [Read more...]
The Email I Would Have Written Myself the Day Before Ben Was Born
Somewhere over the last 24 years, I lost the yearning to dream about what life would be like had Ben been born without complex physical and communication challenges. There was a period when I constantly wanted to press the rewind button to return to a simpler time, to before Ben was part of our world, so I could understand what I’d done so terribly wrong to deserve the burden of raising a child … [Read more...]
…And Grace My Fears Relieved
Amazing Grace is one of my all-time favorite songs. Written by a former slave-trader who lived a less- than-stellar life before he met Christ, this usage defines grace as God’s eternal, life-saving, undeserved favor. The origins of grace in Latin are related to thankfulness --and in Greek, to rejoicing. God is thankful and rejoices over us when we recognize and accept his graciousness (Isaiah … [Read more...]