Special Needs Parenting

Finding Faith And Friendship On The Special Needs Journey

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Appreciating the pit crew in special needs parenting

March 5, 2014 by Gillian Marchenko

Appreciating the pit crew in special needs parenting Before parenting children with special needs... driving alone I know this statement will seem a bit counter-Christian. But sometimes I think all any of us are really trying to do is create mini kingdoms. People need to rule. We need to be noticed. We crave praise. And we need others to notice that we can actually handle our … [Read more...]

Filed Under: Cerebral Palsy, Down Syndrome, Gillian Marchenko Tagged With: Down syndrome, Encouragement, Gillian Marchenko, special needs, special needs parenting, Special Needs parents, special needs support, support

Disability can impact sibling relationships

February 20, 2014 by Ellen Stumbo

“Mom, sometimes, when I look at Nichole she is so cute that I feel like crying because my heart is so full of love.” There are times I look at my children and I feel overwhelmed because of the intense love I feel for them. It is a love so hard to contain that it spills out in tears. I get this feeling, I am a mom. However, coming out of the mouth of my seven-year-old daughter, it surprised me. … [Read more...]

Filed Under: Cerebral Palsy, Down Syndrome, Ellen Stumbo Tagged With: Down syndrome, Ellen Stumbo, siblings

A RARE Kind of Love

February 18, 2014 by Barbara Dittrich

Rare Disease Day - Rare Love {SpecialNeedsParenting.net}

There are so many things that caught me by surprise when I became a mother. I always knew I wanted to have children, but I was never really in touch with my expectations beyond that. I certainly never anticipated that I would become the mother of children with special needs. When our son burst joyfully into the world over 13 years ago, he instantly placed us in that role with the mere testing of … [Read more...]

Filed Under: Barbara Dittrich, Down Syndrome, Hidden Disabilities, Love, Medically Fragile Tagged With: hemophilia, rare disease, World Rare Disease Day

Weekend Links: Vol. 13

February 15, 2014 by Caroline F

Weekly round-up of Links on Special-Needs Topics from our favorite sites

  For a 100th day of school project, Ellen Stumbo helped her girls compile a display of 100 beautiful faces of kids with Down Syndrome. This post will make your eyes water with beautiful love. Barb at Snappin' Ministries asked her husband to write his thoughts about why he stays in their marriage. The Today Show featured the story of Canadian skier (and gold medalist!) Alex Bilodeau … [Read more...]

Filed Under: Down Syndrome, Weekend Links Tagged With: cerebral palsy, Down syndrome, sensory, special needs, weekend links

How Abnormal Shattered My Normality

February 6, 2014 by Jared Buckley

Abnormal Normality

I remember when normality use to be attractive and I feared anything abnormal. But God shattered my desire of normality with an abnormal daddy’s girl. Today, my view of normal and abnormal is radically different. Society’s View of Normal Commercials are helping people determine the needs of society. Movies are influencing people’s expectations with their fairy tale endings and heroic finishes. … [Read more...]

Filed Under: Down Syndrome, Jared Buckley Tagged With: Abnormal, Down syndrome, Jared Buckley, Normal, special needs parenting

You don’t have to be a cheerleader every day

February 5, 2014 by Gillian Marchenko

  I read a blog one day from a mother of a child with Down syndrome. “I love my daughter but I’m not ready to celebrate Down syndrome.” I just want to say that I hear you. And I validate you. You don't have to be a cheerleader every day. Sometimes in our special needs circles certain types of people are pushed forward as spokespeople. You’ve got the instantly accepting parent … [Read more...]

Filed Under: Down Syndrome, encouragement groups, Gillian Marchenko Tagged With: cheerleader, Down syndrome, Gillian Marchenko, special needs encouragement, struggling with special needs

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