Nobody is thankful for the disability trenches. No thank you for wiping rear ends way past the expected age range or getting hair pulled out during a meltdown. I don't see the praises for IEPs that haven't really changed in years because the level of learning is pretty much the same year after year. And no Hallelujah for when high school is finished for the virtually unemployable. We only hear … [Read more...]
Plagues of People, Safety in Numbers
Children on the autism spectrum usually fall in one of two camps when it comes to their feelings about crowds: crowds are either an audience or a plague. For Jesse, crowds are an audience. He loves to mug, and show off, and recite what he knows about things of no interest to the listener. For Noah, crowds are a plague. This makes it a challenge to plan a wedding when both boys are also a part … [Read more...]
Stuck On Repeat (The Special Needs Repetition)
* Some names have been changed. You know why. Almost every day my husband purposely sings a song with the intention of getting the tune stuck on repeat in my head. It's usually something obscure and fairly terrible. (Shhh. Don't tell him I secretly find this endearing.) With the exception of Friday. On Friday I can count on him waking the whole house with Rebecca Black's fabulous and memorable … [Read more...]
I Wasn’t Given a Mom Manual
I remember being in high school and I had to take a health class. You know the one where you had to carry around an egg for a week to see if you can take care of a baby. One class, I remember had to carry a doll baby that cried every time you put it down. That was brutal to watch my friends do that. Well, you just read about all the training I had to be a mother. Yes, that is right, I had … [Read more...]
Autism Awareness Through the Eyes of Jesus
Autism awareness through the eyes of Jesus? During Autism Awareness Month, I like to remind myself and those who know and love someone with autism to look at that child or adult through the eyes of Jesus. Changing one's gaze explodes preconceptions and shifts paradigms in a powerful way. The following was written when my son Joel was ten years old. He is now 31. This is a vision I go back to, time … [Read more...]
The Googolplex of Disability, or, How Many Times I Have to Repeat Myself
I’m going to be honest. I took high school calculus because my best friend was taking it, and I needed to prove I was as smart as she was. I was very insecure, and what’s worse, I hated math. But I did get something good from all those numbers: a B- and a neat little tidbit: A “googol” is 10 to the power of 100. The “googolplex” is significantly larger: 10 to the power of a googol - 10googol, or … [Read more...]